Living with Epilepsy

Living with Epilepsy

Epilepsy significantly impacts various aspects of life, influencing mobility, learning, school attendance, employment, relationships, and social interactions. 

Understanding how epilepsy affects individuals is crucial for a happy and fulfilling life. While epilepsy can present daily challenges, this blog aims to explore the condition, its causes, symptoms, and diagnosis, address questions like how to prevent seizures, seizure triggers, activities to avoid epilepsy, can you live a normal life with epilepsy, can you live alone with epilepsy, can you survive a seizure alone and living with epilepsy.

Understanding Epilepsy

It is a neurological disorder characterized by the brain’s tendency to produce sudden abnormal bursts of electrical energy, leading to seizures.The diagnosis of epileptic seizures is made by analyzing the patient’s detailed clinical history and by performing ancillary tests, like MRI and EEG, for confirmation.
Seizures vary in duration, lasting from seconds to minutes. Epilepsy encompasses a range of disorders causing seizures through different mechanisms, classified into generalized and partial seizures based on brain involvement.

Causes and Symptoms of Epilepsy

Seizure disorder’s exact cause is unknown, but some common factors increase the chances of epilepsy development.

Causes include:

  • Head injury
  • Meningitis or encephalitis brain infection
  • Brain tumor
  • Developmental disorders like autism or ADHD
  • Genetic predisposition
  • Stroke
  • Fever in Children

 

Symptoms include: 

  • Convulsions
  • Losing consciousness
  • Muscle stiffness
  • Confusion
  • Uncontrollable muscle movements
  • Strange sensations or feelings, such as fear or déjà vu
  • Lip smacking
  • Jerking movements of arms and legs 
  • Blank staring

Living with epilepsy

Living with epilepsy necessitates education about the condition, seeking appropriate medical assistance, preparing for potential seizures, and creating a safe living environment. Managing the challenges associated with recurrent seizures is a central aspect of daily life for individuals with epilepsy.

Key aspects or tips for living better with epilepsy:

 

Regular Medical Check-ups and seizure triggers

Regular medical check-ups with a neurologist or epilepsy specialist are crucial for monitoring medication effectiveness, adjusting dosages, and addressing concerns. Individuals with epilepsy can identify and avoid potential seizure triggers by maintaining a seizure diary. 

Understanding and managing these triggers, such as missed medication, stress, lack of sleep, alcohol, and menstruation, contribute to effective epilepsy management.


Sports and Leisure

Individuals with well-controlled epilepsy can engage in most sports and leisure activities with precautions. Choosing low-risk activities, wearing protective gear, supervision, education, hydration, individualized plans, regular monitoring, and open communication are essential for safety. High-risk activities like water sports and adventure sports may be advised against.

 

Home safety measurements

Creating a safe home for individuals with epilepsy involves addressing potential hazards like sharp furniture corners and slippery floors. Recommendations include using dense pile carpeting, padding sharp corners, and installing safety features in the kitchen and bathroom.

For those living alone, precautions include securing doors, avoiding climbing on furniture, and subscribing to emergency hotlines for added safety.

Employment Considerations

For individuals with epilepsy, employment considerations involve discussing the condition with employers to establish a supportive work environment and necessary accommodations. While having epilepsy doesn’t necessarily prevent work, job limitations may apply based on safety concerns. 

 

Education and advocating about epilepsy to individuals

Empowering individuals with epilepsy involves advocating for themselves and educating others about the condition. In the context of school and education, children with epilepsy can attend regular school and engage in activities. It’s crucial to inform school staff about the condition provide updates on medication and seizure first-aid.

 

Preventing seizures

Preventing seizure strategies include:

  • Consistent adherence to antiepileptic medications
  • Attending regular check-ups
  • Ensuring adequate sleep, 
  • Limiting alcohol and caffeine,
  • Staying hydrated
  • Engaging in regular exercise
  • Keeping a seizure diary, avoiding overexertion
  • Wearing a medical ID bracelet for emergencies

Treatment of Epilepsy

 Epilepsy treatment includes: 

Antiepileptic Medications: 

Antiepileptic medications, also known as anticonvulsants, are the primary treatment for epilepsy. These drugs stabilize brain electrical activity, reducing the likelihood of seizures by preventing abnormal neuron firing.

Surgery:

Standard surgical options include:

  • Temporal Lobectomy (removing part of the temporal lobe).
  • Lesionectomy (targeting specific brain lesions).
  • Hemispherectomy (disconnecting or withdrawing part of an affected hemisphere).
  • Corpus Callosotomy (cutting the corpus callosum to prevent seizure spread).

 

Vagus Nerve Stimulation:

Vagus Nerve Stimulation (VNS) is a treatment for epilepsy involving an implanted device stimulating the vagus nerve. Like a pacemaker, the device is placed under the skin with a lead wire connected to the neck’s left vagus nerve. 

 

Dietary therapy:

The ketogenic diet involves a high-fat, low-carbohydrate, and adequate-protein approach, inducing a state of ketosis that may have anti-seizure effects. Ketones, produced during fat breakdown, stabilize brain electrical activity. Different types of ketogenic diets, including the classic, modified Atkins, and MCT versions, offer flexibility.

 

Alternative Therapies:

Alternative Therapies include:

  • In acupuncture, doctors insert thin needles into specific body points for treatment. 
  • Massage therapy manipulates soft tissues for stress relief, potentially aiding seizure management.
  • Meditation techniques, especially mindfulness meditation, help manage stress, a common seizure trigger. Regular meditation is generally considered safe and contributes to overall well-being. 

Epilepsy Treatment at Kids Neuro Center in Dubai

Kids Neuro Clinic is a child-focused neuroscience clinic that assists kids with neurological and speech issues. Their epilepsy program provides valuable educational opportunities and training for physicians, patients, and their families. Their team of highly skilled epilepsy doctors in Dubai collaborate seamlessly to deliver your child the finest pediatric and neurological care.

Book your appointment today.